I'm glad I could help. Unfortunately because amyloidosis is a rare disease, many doctors don't know much about it.
Also, bear in mind that if you Google amyloidosis, some of the information you find may be confusing and alarming. There are many different types of amyloidosis, each of which has different causes, different symptoms and different treatments.
Patients may become unnecessarily alarmed by reading information that may not apply to their own case at all.
There is a lot of information in our
NAC patient information site and in our
patient information leaflets, but perhaps you should wait for a clearer diagnosis of what type of amyloidosis you have before looking at these.
Good luck and please be in touch if you have any more questions.