National Amyloidosis Centre Patient Forum

Amyloidosis => General Discussions => Topic started by: througham on May 12, 2021, 12:58:55 pm

Title: Wild Type ATTR Amyloidosis
Post by: througham on May 12, 2021, 12:58:55 pm
I have been diagnosed with this and would like to try and gain further knowledge on dietary requirements.  Is there an approved diet, or recommended dietician?
Title: Re: Wild Type ATTR Amyloidosis
Post by: Miriam Vered on May 19, 2021, 09:39:55 pm
A balanced, healthy diet including plenty of protein and a wide range of foods is usually advisable for most patients with wtATTR amyloidosis. It can be helpful to meet with a dietician for precise and personalised dietary advice. Many patients with ATTR amyloidosis affecting the heart (cardiac ATTR amyloidosis) should limit their fluid intake. Strict fluid balance control is important. Specialist heart failure nurse involvement may help patients to achieve this. Fluid excess can be avoided by careful attention to the 3 Ds:1.   Diet2.   Diuretics3.   Daily weightsFor more information on fluid balance control see here: https://www.amyloidosis.org.uk/about-amyloidosis/cardiac-amyloidosis-2/treatment-of-cardiac-amyloidosis/ (https://www.amyloidosis.org.uk/about-amyloidosis/cardiac-amyloidosis-2/treatment-of-cardiac-amyloidosis/)