Hi Miriam,
Very many thanks for this. My letter was to be addressed to Eric Lowe, Director of MUK and Judy. I know Judy is a member of UKAAG and is very active in promoting Amyloidosis.
I have been delighted to receive 67 positive replies to my draft letter which I sent out to all my contacts here and overseas yesterday. Some have not yet responded. Things have moved very quickly.
I included Isabelle Lousada, Chairman of the US Amyloidosis Foundation. We have exchanged correspondence previously. As you will probably know, Isabelle works closely with MUK and contacted them herself yesterday as a result of my appeal endorsed by so many. I am delighted to report back
that MUK are working on the matter and that the key proceedings of the 2015 AL Amyloidosis Infoday WILL be recorded. I am sure everyone will be equally delighted as last year's event was massively appreciated by all who attended and by those of us who viewed it through the MUK website.
Consequently I shall not now be sending the letter. A sincere THANK-YOU to all who contacted me so promptly and with such positive comments.