Author Topic: 2016 Annual NAC Network Meeting.  (Read 4205 times)

patpinchin

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  • Posts: 603
  • AL - extensive in skin. mouth + palatal nerves '04
2016 Annual NAC Network Meeting.
« on: October 19, 2015, 06:09:02 pm »
On the front page of our recent excellent newsletter, there was a very informative feature on the 7th Annual NAC Network Meeting. Several details struck me as very important for us as patients.

1. 200 doctors from all over the Uk attended this year. The meeting has grown in popularity over the years.

2.  "After spending a day hearing lectures from the NAC doctors and other specialists, participants return to their hospitals all over the UK better informed about amyloidosis diagnosis and treatment".

3 As a result "an ever increasing number of referrals have been made to the NAC".

4. "Specialists from Norwich, Bath, Liverpool and Birmingham reported on the advances they are making in improving amyloidosis management in their hospitals".

The 8th Annual NAC Network Meeting is to be held in The Atrium at The Royal Free on February 29th 2016. The NAC has a long list of Doctors in patients' local hospitals who will shortly receive details about the meeting. I wonder how many of them will be interested in this wonderful learning opportunity and decide to attend?

When I reflect on the very sad stories of late diagnosis from our bereaved friends here who have lost loved ones to this cruel disease, and Brian's (aka Spudair) frustrating efforts at Ayr hospital, it makes me determined to reinforce the NAC's postal and email notifications by bringing this crucial meeting to the attention of my local Specialists.  To my knowledge, during my 10 years as an NAC patient, my very good Haematologist has never met the wonderful clinical team who have advised and monitored me during that time. By his own admission, neither he nor his new colleague is very well informed of the recent developments in treatments nor of the various clinical trials. The 2016 meeting will be an opportunity.

My next Haematology appointment is imminent. I have 2 newsletters ready to give to my Doctor. I hope he will agree to my suggestion.  Anyone else willing to do the same?
Pat

Mhelenx

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  • Posts: 24
  • Localised paranasal amyloidosis, systemic AL type
  • Reason for joining: Localised paranasal AL Amyloidosis, patient
  • Diagnosed: 2005
Re: 2016 Annual NAC Network Meeting.
« Reply #1 on: October 20, 2015, 12:04:37 am »
Thanks Pat for the update. I am willing to help spread the news to my medical team to benefit any AMY patients in my area. Your dedication to help and inform others is admirable and worth praising. In the short time I have known you, your support is unmeasurable.
MhelenX✨