Author Topic: Amyloidosis Research Consortium live streaming of patient focused webinar Nov 16  (Read 4337 times)

patpinchin

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  • AL - extensive in skin. mouth + palatal nerves '04
The Amyloidosis Research Consortium is pleased to announce that the upcoming amyloidosis patient-focused forum with drug development authorities will be webcast live on Monday, November 16th from 14.00h UK time.  Registration is required to view the webcast.
 
To view the meeting go to: http://live.hosted.events/Amyloidosis

 This is a collaborative international initiative which will have a beneficial impact on Amyloidosis  worldwide. Following the US webinar, meetings in Europe will take place involving the European Medicines' Agency, drug companies involved in development programmes for Amyloidosis and other interested parties. This is a powerful force for the patient voice to be heard by those best placed to help us beat this disease......our Doctors and drug companies.

ARC is committed to ensuring that the patient voice is heard and reflected at all stages of drug discovery and development and that regulatory policy meets the expectations of our patients and families.
 
There will be opportunities to share your comments after the event. To find out more, please visit: http://www.arci.org/fda-page

Isabelle Lousada
President & CEO
Amyloidosis Research Consortium
W 617-899-8810
C 781-301-1362
www.arci.org

For those unable to watch at 14.00h on Monday Nov 16th, Isabelle is investigating the logistics of making the webinar available to be viewed retrospectively. Watch this space!
« Last Edit: November 13, 2015, 07:35:09 pm by patpinchin »
Pat

Sharyn Boyd

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  • Reason for joining: Husband just diagnosed with AL Amyloidosis.
  • Diagnosed: May 2015
Hi there,

I unfortunately missed this, do we know if it will be possible to view retrospectively?

Many thanks
Sharyn x

patpinchin

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  • AL - extensive in skin. mouth + palatal nerves '04
Yes Sharyn, there will be a link in due course which I will post on the forum.
I will also send you by the email facility here something you may be interested in reading.
Pat

patpinchin

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  • AL - extensive in skin. mouth + palatal nerves '04
Recording of the ARC conference now available
« Reply #3 on: November 20, 2015, 03:57:09 pm »
The recording of the ARC patient conference with the FDA is now available to view.

http://www.arci.org/fda-page
Pat