Author Topic: ARF chosen as The Charity of the Year by The Window Company, Sale.  (Read 3460 times)

patpinchin

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An enormous THANK-YOU to Wayne and The Window Company, Sale, Cheshire, for choosing The UCL Amyloidosis Research Fund (ARF) as their charity of the year for 2016.  The company is very experienced in fund raising for charity.  Its workforce has worked very hard training for and participating in a wide range of different activities. This year they plan to participate in The Three Peaks Challenge, run a marathon, go rock climbing, car washing and organise a special concert, all to raise money for the ARF in support of the work of our Doctors and scientists at the NAC.  Every penny raised will be greatly appreciated by the NAC team.

Window Company owner Wayne was so moved and inspired by Lesley Toft's journey with the rare disease that is amyloidosis, that after discussion with his colleagues, they unanimously decided the ARF deserved their support.  Wayne and his team felt a huge debt of gratitude towards those who had saved Lesley's life. Lesley's son Darren is a well respected member of the company workforce, as was Lesley's devoted husband John whom she tragically lost unexpectedly during her pre-SCT chemotherapy. John was the love of Lesley's life and her "rock". The company's charity work will also honour the memory of John who is greatly missed by his former colleagues.

 In 2013, Wayne was a first hand observer of the chemotherapy and SCT that Lesley had to undergo to slow progression of the disease. He was awestruck by Lesley's courage throughout her tough treatment and also by her perseverance along the difficult road to recovery. Gradually he learnt about the complexity and severity of the disease and the outstanding clinical and research work of the NAC. 

For Lesley the SCT was particularly challenging because of prolonged infections which meant 3 months longer than expected hospitalisation. Without John by her side for love and support, she has found the recovery process extra hard because of the depths of loneliness and sadness of bereavement. Lesley needed to continue full time working. Coping with tiredness, exhaustion and frequent infections frequently experienced by sufferers, has taken its toll together with coming to terms with a very different and extra demanding way of life.

The Window Company's blog about their exciting and challenging year makes impressive reading:
http://the-windowco.co.uk/blog/the-ucl-amyloidosis-research-fund-charity-of-the-year-2016/

Lesley has become the friend of several of us through the forum but probably none of us knows any of The Window Company team. Their tremendous efforts to raise funds for our UCL Amyloidosis Research Fund deserve our support because it will ultimately benefit us all.  :)  :) :)  :)

Please do support the generosity of Wayne and the guys at The Window Company by making a donation here:
https://www.justgiving.com/thewindowco/
« Last Edit: January 10, 2016, 10:04:24 am by patpinchin »
Pat

Lesley

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  • Reason for joining: Amyloid patient (AL)
  • Diagnosed: December 2012
Re: ARF chosen as The Charity of the Year by The Window Company, Sale.
« Reply #1 on: January 08, 2016, 09:59:07 pm »
Thanks pat. This is all very exciting,emotional and overwhelming but I'm proud and thrilled that the window company are dedicating the whole of 2016 to raise funds for the nac. This isn't about me, it's about all the Amy patients out there, old and new. Here to hopefully raising some good for a better future for us all
X

patpinchin

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Re: ARF chosen as The Charity of the Year by The Window Company, Sale.
« Reply #2 on: January 23, 2016, 02:09:23 pm »
The Window Company is holding its first charity event for the UCL Amyloidosis Research fund.
Pat