Author Topic: New AL amyloidosis videos on Myeloma TV  (Read 4632 times)

shallahan

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  • Posts: 1
  • Reason for joining: Myeloma UK Patient Information Officer
New AL amyloidosis videos on Myeloma TV
« on: June 29, 2017, 12:45:55 pm »
Hi All,
 
I’m pleased to announce that Myeloma UK now have four new AL amyloidosis videos, starring Drs Ashutosh Wechalekar and Helen Lachmann, available on Myeloma TV. These are short (3 – 5 minute) films, each focussing on one of the following four topics:
 

You can access the videos by clicking on the links above or by clicking on the following link: https://www.myeloma.org.uk/information/myeloma-tv/ They are also available on our YouTube channel https://www.youtube.com/user/MyelomaUK/
 

If you have any questions or comments you can reply to this forum entry, email me at selena.hallahan@myeloma.org.uk or call the Myeloma UK office on 0131 557 3332 and ask for Selena.

Best wishes,

Selena Hallahan, Patient Information Officer at Myeloma UK

AnnR

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  • Posts: 126
  • Reason for joining: Recently diagnosed with cardiac amyloidosis
  • Diagnosed: April 2017
Re: New AL amyloidosis videos on Myeloma TV
« Reply #1 on: July 04, 2017, 05:52:17 pm »
Thank you. Very clear videos and very useful.

patpinchin

  • *****
  • Posts: 603
  • AL - extensive in skin. mouth + palatal nerves '04
Re: New AL amyloidosis videos on Myeloma TV
« Reply #2 on: July 05, 2017, 05:35:36 pm »
Hi Selena,

As always resources from MUK are excellent for both AL amyloidosis, MGUS and Myeloma. These new recordings from Drs Wechalekar and Lachmann at the NAC are no exception to the very high quality of resources which have become an expectation from both the NAC and MUK. The new videos are deliberately short and succinct but packed with very useful and enlightening information delivered  in patient friendly language. The way in which our outstanding NAC Drs explain various aspects this very complex disease, current treatment strategies and new developments with exceptional clarity makes the recordings very watchable for all of us.

Once again, AL amyloidosis sufferers in the U.K. are very grateful to our wonderful NAC team supported robustly by Myeloma UK. They are both constantly developing exponentially year on year.

THANK-YOU very much.
A* to you all.  :) :)
« Last Edit: July 06, 2017, 07:52:43 pm by patpinchin »
Pat