Author Topic: Pentamidine  (Read 2571 times)

anna

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  • Posts: 32
  • Reason for joining: patient
  • Diagnosed: 2 years ago approx
Pentamidine
« on: December 16, 2017, 11:01:45 am »
Hi has anyone else used the Pentamidine nebuliser and if so how did it make them feel . I would also be interested to know how often you where given it within the 4 week cycle. Thank you 

Gary

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  • Posts: 37
  • Married to Joanne. Have a daughter Jessica.
  • Reason for joining: AL amyloidosis patient
  • Diagnosed: March 2007
Re: Pentamidine
« Reply #1 on: December 16, 2017, 04:59:18 pm »
Hi Anna
I had pentamidine nebulisers when I was having chemo treatment.
I found them very good and no side affects.
Hope all goes well for you.
Cheers
Gary.

anna

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  • Posts: 32
  • Reason for joining: patient
  • Diagnosed: 2 years ago approx
Re: Pentamidine
« Reply #2 on: December 19, 2017, 02:24:20 pm »
Thank you  for replying how offended did you have it ???

Trudwick

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  • Posts: 19
  • Reason for joining: Husband just been diagnosed with al
  • Diagnosed: Yesterday but told we need to go up to London for the scan and staging
Re: Pentamidine
« Reply #3 on: January 06, 2018, 05:34:48 pm »
Hi did you have lung problems my husband has been in hospital loads of times with nuemonia and is back in again never heard of  pentamidine  they are giving him nebulizer salbutimole  and saline but he isn't getting any better

anna

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  • Posts: 32
  • Reason for joining: patient
  • Diagnosed: 2 years ago approx
Re: Pentamidine
« Reply #4 on: January 22, 2018, 07:06:24 pm »
No I don't have lung problems .

But Im still not getting on with the Pentamidine as it makes me feel sick but will talk to my Consultant about it so may have some feedback soon . I wish you and your family well .