Home
Help
Search
Login
Register
Welcome,
Guest
. Please
login
or
register
.
National Amyloidosis Centre Patient Forum
»
Amyloidosis
»
General Discussions
»
Pentamidine
« previous
next »
Print
Pages: [
1
]
Go Down
Author
Topic: Pentamidine (Read 3717 times)
anna
Posts: 32
Reason for joining: patient
Diagnosed: 2 years ago approx
Pentamidine
«
on:
December 16, 2017, 11:01:45 am »
Hi has anyone else used the Pentamidine nebuliser and if so how did it make them feel . I would also be interested to know how often you where given it within the 4 week cycle. Thank you
Logged
Gary
Posts: 40
Married to Joanne. Have a daughter Jessica.
Reason for joining: AL amyloidosis patient
Diagnosed: March 2007
Re: Pentamidine
«
Reply #1 on:
December 16, 2017, 04:59:18 pm »
Hi Anna
I had pentamidine nebulisers when I was having chemo treatment.
I found them very good and no side affects.
Hope all goes well for you.
Cheers
Gary.
Logged
anna
Posts: 32
Reason for joining: patient
Diagnosed: 2 years ago approx
Re: Pentamidine
«
Reply #2 on:
December 19, 2017, 02:24:20 pm »
Thank you for replying how offended did you have it
Logged
Trudwick
Posts: 19
Reason for joining: Husband just been diagnosed with al
Diagnosed: Yesterday but told we need to go up to London for the scan and staging
Re: Pentamidine
«
Reply #3 on:
January 06, 2018, 05:34:48 pm »
Hi did you have lung problems my husband has been in hospital loads of times with nuemonia and is back in again never heard of pentamidine they are giving him nebulizer salbutimole and saline but he isn't getting any better
Logged
anna
Posts: 32
Reason for joining: patient
Diagnosed: 2 years ago approx
Re: Pentamidine
«
Reply #4 on:
January 22, 2018, 07:06:24 pm »
No I don't have lung problems .
But Im still not getting on with the Pentamidine as it makes me feel sick but will talk to my Consultant about it so may have some feedback soon . I wish you and your family well .
Logged
Print
Pages: [
1
]
Go Up
« previous
next »
National Amyloidosis Centre Patient Forum
»
Amyloidosis
»
General Discussions
»
Pentamidine