Author Topic: Chloe’s Jurassic Coast walk in aid of amyloidosis research at the NAC  (Read 2256 times)

patpinchin

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My daughter Chloe is walking 42 km  of the Jurrasic Coast here in Dorset in July in aid of The UCL Amyloidosis Research Fund (ARF) at the NAC.

This will be Chloe’s first Jurassic Coast walk in our home county of Dorset.
Chloe has been fundraising for the ARF since 2010. This will be yet another fundraiser by Chloe. She has a continuous fundraiser Bespoke Poems in Aid of Amyloidosis, with a website:
 www.bespokepoems.com

Last year one of Chloe’s poems expressing what it feels like to be diagnosed with amyloidosis was made into a rap in aid of The UCL Amyloidosis Research Fund at the NAC.

https://m.youtube.com/watch?feature=youtu.be&v=h2bw5L2UzO8

The NAC depends so much on The UCL Amyloidosis Research Fund to support the clinical work of our amazing NAC Drs and our research scientists who we patients usually do not see but who do world class amyloidosis research.

Probably the biggest project supported by the Amyloidosis Research Fund was the new Cardiac MRI suite officially opened by HRH The Princess Royal In April 2016,  in her role as Vice Chancellor of University College London. Previously cardiac patients had to travel across London for a CMRI scan. As a direct result of the new CMRI suite at the NAC, huge advances have been made in research into cardiac amyloidosis of every type. 
 
http://www.ucl.ac.uk/amyloidosis/pdfs/nac_newsletter_8.pdf

The  NAC recently purchased new proteomics mass spectrometry equipment thanks to a commitment of £100,000 from the Amyloidosis Research Fund with a research grant making up the rest totalling £500,000.

The NAC is one of just a few specialist amyloidosis centres in the world with the necessary expertise and sophisticated scientific equipment to type amyloid and much else besides. See the front page feature here: http://www.ucl.ac.uk/amyloidosis/pdfs/nac_newsletter_10.pdf

“The resources provided by the UCL Amyloidosis Research Fund, through the generosity of donors, will undoubtedly make major contributions to alleviating the suffering and saving the lives of many thousands of individuals afflicted by a terrible and hitherto incurable disease.  Every penny is received with sincere gratitude and is used specifically and in its entirety for amyloidosis research.”

Please support Chloe’s Jurassic Coast walk by making a donation to the UCL Amyloidosis Research Fund, through justgiving.

 “Every gift of any size will make a real difference.”

https://www.justgiving.com/Chloe-Bullock1

THANK-YOU in anticipation  :) :)

PS: See photo on display in the reception area of the NAC.
« Last Edit: June 04, 2018, 08:36:48 am by Miriam Vered »
Pat

AnnR

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  • Reason for joining: Recently diagnosed with cardiac amyloidosis
  • Diagnosed: April 2017
Thanks to Chloe for doing this, have donated.

patpinchin

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Hi Ann,

On behalf of Chloe, many thanks. Every little helps and benefits us all.  :)
« Last Edit: June 04, 2018, 05:11:18 pm by patpinchin »
Pat

patpinchin

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Chloe’s fundraising walk in aid of the Amyloidosis Research Fund at the NAC along 44kms of the Jurassic Coast takes place TODAY, Saturday July 2ist. Rather hit and sunny.
Chloe and her friend, fundraising for prostate cancer research,  have taken plenty of factor 50 suncream, water, bananas, other nutritious snacks plus sunhats with them!

See attached photo below. Chloe printed off the image onto a transfer then ironed it on - very easy for other Amyloidosis Research Fundraisers.

Donations gratefully received at link below.
Every penny will be very well spent and hugely  appreciated.

 “Every gift of any size will make a real difference.”

https://www.justgiving.com/Chloe-Bullock1

THANK-YOU  :) :)
« Last Edit: July 21, 2018, 03:31:47 pm by patpinchin »
Pat

patpinchin

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.
Jurassic Coastal walk from Bridport to .weymouth completed in 9h23m yesterday

Chloe has raised £832+ so far for The UCL Amyloidosis Research Fund with more donations promised.

So very proud of our daughter.  :) :) :)
« Last Edit: July 23, 2018, 01:43:07 pm by patpinchin »
Pat