Hi Jan,
The way that you've described your husband's discomfort at the moment resonated a lot with me. After I’d been diagnosed with AL Amyloidosis, I had my chemo over a few months starting in April 2011. My Amyloidosis affects all the organs that you've mentioned but my nervous system escaped.
Whilst on the chemotherapy, I found that my entire body was aching and I'd lost quite a lot of muscle mass, which meant that my bones were sore when they came in contact with one another. I really couldn't find a respite from this. Then I remembered seeing a leaflet in my haematology clinic about a local charity that provided complimentary therapies for cancer patients (for free). I phoned them and explained that I didn't have cancer per se but was happy to pay for an aromatherapy massage if they could arrange it.
As a fairly average guy, asking about aromatherapy massage didn't sit comfortably with me at first. I was embarrassed about the state of my body, as well as everything else. However, the therapists who free-lanced for the charity (Circle of Comfort) were all used to treating very ill patients and the lady who came to our house (complete with her own table!) to see me was excellent.
I can't tell you just how good that first session felt. After suffering for several weeks, I finally got my first decent night’s sleep and the boost to my morale lasted. I organised a second session about 6 months later and tried a penetrating massage with hot stones. Again, this soothed my aching muscles and left me feeling great. I don't know if there is a similar charity in your area (I'm in Fife) but I'm sure that you'd be able to find a masseuse\r privately.
Outside of that, my only other ‘pamper tip’ would be to get a Turkish hot shave!
I was 47 when diagnosed but have, so far, made very good progress. Along with everyone on this forum, my heart is with your husband, yourself and your family. Good luck!
Mark