Author Topic: Useful Links  (Read 9108 times)

Miriam Vered

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Useful Links
« on: October 07, 2014, 11:01:08 am »
Amyloidosis is a rare disease and most people have never heard of it. If you or your family member have amyloidosis you might find it helpful to talk to other patients and their families on this forum.
Much information about amyloidosis is available on the internet.  Some of it is alarming and much of it can be confusing.  There are many different types of amyloidosis. Each type has different causes, different symptoms and different treatments.
 
For reliable information about amyloidosis, please visit the National Amyloidosis Centre Patient Information website at: www.amyloidosis.org.uk


The National Amyloidosis Centre (the NAC) is part of the University College London (UCL) Division of Medicine and is situated at the Royal Free Hospital in Hampstead, London. The NAC has been at the cutting edge of treatment and research into all aspects of amyloidosis for over 25 years and has been responsible for the UK national caseload of amyloidosis since 1999. The NAC is a highly specialised NHS clinical service funded by NHS England to provide a diagnostic service for amyloidosis patients throughout the entire UK.


For more information about the National Amyloidosis Centre, please visit:
http://www.ucl.ac.uk/amyloidosis/nac
Downloadable PDFs of the NAC newsletters are available at:
http://www.ucl.ac.uk/amyloidosis/nac/newsletters
Downloadable PDFs of the NAC patient information leaflets are available at:
http://www.ucl.ac.uk/amyloidosis/nac/patient-info-leaflets
To make a donation to the NAC, go to:
https://www.royalfreecharity.org/donate/fund/amyloidosis-research-fund
« Last Edit: September 24, 2019, 10:31:38 am by Miriam Vered »

patpinchin

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Re: Useful Links
« Reply #1 on: January 22, 2015, 09:16:29 am »
Thank-you for posting this info and links Miriam. Very useful to have it to hand. Whilst there are live fundraising ventures at the moment, (usually always), many are not aware of them.  The NAC does a great job publicising fundraising events both at the NAC and in the newsletters but somehow this info still isn't noticed by all. It is useful to have the link for general donations on the forum too.
Pat