At the moment the member's name appears and underneath it says "newbie". Well instead of newbie it could state patient, family or friend. This is a good space for stating the kind of Amyloidosis as well. It's better than contained in messages because it will help people to get to know others more quickly as the repetition is always there. Whereas if contained in messages it would involve remembering and searching out information especially when the forum becomes very active which I am sure it will.
I do think there needs to be little leaflets handed out at the NAC reception (for starters) telling people this forum exists albeit in the very early stages. At the hospital I attend, until I complained not one person, consultant or specialist nurse,, ever mentioned the word "Amyloidosis". There was not one reference to it in all the literature. The consultant and specialist nurse kept using the word Myeloma and I kept having to say that I didn't have myeloma, I had AL Amyloidosis. At one point I was told it didn't matter because myeloma was very similar!!! I did think to myself "it's no wonder nobody has heard of Amyloidosis if the so-called experts call it something else".