Author Topic: Travelling from Ireland to London NAC and covid  (Read 357 times)

David1974

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  • Posts: 8
  • Reason for joining: Patient, age 46, AL
  • Diagnosed: Dec 2020
Travelling from Ireland to London NAC and covid
« on: January 28, 2021, 09:33:14 pm »
Hi,

I would  like to know if the NAC are taking new referrals from patients consultants for newly diagnosed patients with AL Amyloidosis from the Republic of Ireland. I was diagnosed last December.
What is the procedure during covid and boarders.
I have my SCT starting next April 6th and i haven't been to the Royal Free NAC as yet. The timing is getting tight. With the covid vaccine taking 21-28 days for 90% plus efficacy after second dose.
Should i have the scan done before SCT or after? Can i get to London to get it done?
I would really like to have the SAP scan before transplant!
I would appreciate any help in this regard. My consultant and I are meeting next Monday to discuss. Any information much appreciated.

Kind Regards
David Commins
Ireland.

Miriam Vered

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  • Posts: 553
Re: Travelling from Ireland to London NAC and covid
« Reply #1 on: February 01, 2021, 08:30:00 am »
Hi David,
The NAC is taking new referrals.
I recommend that you ask your doctor to consult with the NAC doctors regarding your case and regarding timing and visit logistics.
The NAC doctors' contact information is available here: https://www.ucl.ac.uk/amyloidosis/national-amyloidosis-centre
Information for referring physicians is available here: https://www.ucl.ac.uk/amyloidosis/national-amyloidosis-centre/information-referring-physicians
Good luck.