My husband has AL amyloidosis, diagnosed three and a half years ago. He has it in his heart and kidneys.
He started on velcade for about six months, which didn’t work, was switched to thalidomide for six months, which produced a good result. His light chains were at such a good level that he was taken off treatment for five months, when his light chains level rose, so was then started on lenalidomide at 15mg. This has been reduced over time to 5mg and he has now been on this treatment for nearly two years. His heart function has been stable, his kidney function averages about 26/28, though this plummeted when he had COVID in March 2020, but has recovered to his previous levels. Over time, the supporting drugs, eg dexamethosone, prednisolone etc have been withdrawn.
I hope this gives you some hope for the future. When first diagnosed, the future looked bleak, but three and a half years later he is still here, and able to live a fairly normal life, despite COVID restrictions. He now has a blood test monthly, and clinic every two months, instead of hospital visits at least weekly, as it was at the beginning.
Good luck for the future.