Author Topic: Newly diagnosed, very scared  (Read 1674 times)


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  • Posts: 13
  • Reason for joining: Newly diagnosed, al amyloidosis, kidneys, liver, spleen, early heart, autonomic neuropathy
  • Diagnosed: 23/3/21
Re: Newly diagnosed, very scared
« Reply #15 on: April 05, 2021, 04:22:14 pm »
Oh and a funny or not so funny, on the ward there are great nurses and not so great. One came and asked me about my fistula and whether I wanted my nappy changed! I said excuse me, I work you know....


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  • Posts: 1
  • Reason for joining: I' m receiving treatment for both. Would like to give and receive info from forums
  • Diagnosed: August 2020
Re: Newly diagnosed, very scared
« Reply #16 on: May 23, 2021, 06:59:09 pm »
Hello everyone. I'm new to the forum. I was diagnosed a year ago with multiple myeloma and familial Amyloidosis. I'm finding it difficult to go from being very active to barely being able to walk my own length. Sorry for the doom and gloom