Author Topic: Wild Type ATTR Amyloidosis  (Read 519 times)

througham

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  • Posts: 2
  • Reason for joining: patient wild-typeATTR
  • Diagnosed: 2020
Wild Type ATTR Amyloidosis
« on: May 12, 2021, 12:58:55 pm »
I have been diagnosed with this and would like to try and gain further knowledge on dietary requirements.  Is there an approved diet, or recommended dietician?

Miriam Vered

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  • Posts: 555
Re: Wild Type ATTR Amyloidosis
« Reply #1 on: May 19, 2021, 09:39:55 pm »
A balanced, healthy diet including plenty of protein and a wide range of foods is usually advisable for most patients with wtATTR amyloidosis. It can be helpful to meet with a dietician for precise and personalised dietary advice. Many patients with ATTR amyloidosis affecting the heart (cardiac ATTR amyloidosis) should limit their fluid intake. Strict fluid balance control is important. Specialist heart failure nurse involvement may help patients to achieve this. Fluid excess can be avoided by careful attention to the 3 Ds:1.   Diet2.   Diuretics3.   Daily weightsFor more information on fluid balance control see here: https://www.amyloidosis.org.uk/about-amyloidosis/cardiac-amyloidosis-2/treatment-of-cardiac-amyloidosis/