Very good idea, Miriam. It will help you to continuously improve the forum:
- I agree with the suggestions of many of the other members that instead of newbie, may be "Patient, carer...etc" should be there.
- also the brief status underneath the name should indicate the type of AMY (AL, AA..etc), diagnosis date, type of treatment if any and the current status (CR, partial response..etc.). This, of course should come from the members themselves.
- I am not sure whether this is technically possible or not, but if you can dedicate a section for all the media, slides and pdf files attached to the posts from the members, it might be of a great help. May be pinned on top of the regular discussions?
We would then have a dedicated and accessible section for all the information exchanged instead of having them scattered among the various posts. But again, I am not sure if this is feasible.
Thanks and keep up the good work