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Alnylam Patisiran Trial for Hereditay ATTR with FAP
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Topic: Alnylam Patisiran Trial for Hereditay ATTR with FAP (Read 4984 times)
georgeturner
Posts: 126
Reason for joining: Patient Familial ATTR amyloidosis
Diagnosed: 13 May 2014
Alnylam Patisiran Trial for Hereditay ATTR with FAP
«
on:
April 20, 2016, 08:42:58 pm »
Complete 18-Month Data from Ongoing Phase 2 OLE Study with Patisiran in Development for the Treatment of Hereditary TTR-Mediated Amyloidosis with Polyneuropathy (hATTR-PN).
http://www.alnylam.com/capella/presentations/complete-18-month-ph-2-ole-data-from-patisiran/
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Slainte Mhath,
George
Roger Curlett
Posts: 5
Reason for joining: hereditary ATTR amyloidosis patient
Diagnosed: March 2015
Re: Alnylam Patisiran Trial for Hereditay ATTR with FAP
«
Reply #1 on:
April 24, 2016, 09:57:09 pm »
Cheers George, hopefully we'll all have access to this drug once it's available post trials.
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georgeturner
Posts: 126
Reason for joining: Patient Familial ATTR amyloidosis
Diagnosed: 13 May 2014
Re: Alnylam Patisiran Trial for Hereditay ATTR with FAP
«
Reply #2 on:
April 25, 2016, 10:09:48 am »
Roger,
With the trials of ALNYLAM's Patisiran and Revusiran along IONIS TTR RX all showing promising results, it's looking much more hopeful for ATTR patients. It takes a lot of time, but let's hope they are approved and become available soon.
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Slainte Mhath,
George
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National Amyloidosis Centre Patient Forum
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Alnylam Patisiran Trial for Hereditay ATTR with FAP