Author Topic: Volunteers for survey needed - hereditary ATTR amyloidosis  (Read 2214 times)

Miriam Vered

  • Administrator
  • *****
  • Posts: 560

I've been asked to post the following:


The Amyloidosis Research Consortium UK (ARC UK) is looking for hereditary ATTR (hATTR) patients and caregivers to complete a survey about their experiences with and priorities for hATTR treatment. The information collected through the survey will help make a strong case to regulatory bodies such as NICE about the value of new treatments to the hATTR community. We need as many patients and caregivers/family members from the UK to take part as possible.

There are two surveys, one for patients and one for caregivers/family members. The survey takes around 20 minutes to complete.

Your participation will play an important role in shaping the future treatment landscape for hATTR. If you have any questions please contact the ARC UK team on +44 (0)131 550 3866.

Take part now in the hATTR patients survey
 
 
Take part now in the hATTR caregivers survey


Thank you, in advance, for your participation.
« Last Edit: June 04, 2018, 09:19:24 am by Miriam Vered »