Author Topic: Psychological support  (Read 1528 times)

Mair Reardon

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  • Posts: 1
  • Reason for joining: Husband Recently diagnosed with amyloidosis probably Hereditary ATTR but that has yet to be confirmed.
  • Diagnosed: He had the scan three weeks ago at Barts we were told two weeks ago
Psychological support
« on: April 24, 2022, 08:45:24 am »
Hi
Is there any psychological support available through the NAC and if not do you know where we can find it?
Both for my husband and family

Miriam Vered

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  • Posts: 572
Re: Psychological support
« Reply #1 on: April 24, 2022, 12:22:20 pm »
I'm afraid not – via GP is best or via patient organisations.

Lesley

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  • Posts: 191
  • Reason for joining: Amyloid patient (AL)
  • Diagnosed: December 2012
Re: Psychological support
« Reply #2 on: May 06, 2022, 11:56:23 am »
Im no expert on this but I do think speaking to other Amyloid patients helps tremendously. I have made some very good supportive friends this way. They understand Amy totally and its good to share thoughts and fears. Unless you have Amyloid or live with someone who does, you dont understand how this affects your body, even post treatment.
Its good to buddy up and if anyone on here wants that, then Im happy to do so.

Lesley
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