Im no expert on this but I do think speaking to other Amyloid patients helps tremendously. I have made some very good supportive friends this way. They understand Amy totally and its good to share thoughts and fears. Unless you have Amyloid or live with someone who does, you dont understand how this affects your body, even post treatment.
Its good to buddy up and if anyone on here wants that, then Im happy to do so.
Lesley
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