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Author Topic: Venetoclax with AL  (Read 2453 times)

orishen

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  • Posts: 10
  • Reason for joining: AL patient
  • Diagnosed: Feb 2017
Venetoclax with AL
« on: May 31, 2019, 10:26:25 am »
Hi out there
I am now on a sixth line of therapy and have responded very well to Venetoclax.
Anyone has experience with this medication in AL amyloidosis?
Thanks
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AnnR

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  • Posts: 126
  • Reason for joining: Recently diagnosed with cardiac amyloidosis
  • Diagnosed: April 2017
Re: Venetoclax with AL
« Reply #1 on: June 13, 2019, 10:18:45 am »
Hi
Sorry I have not had any experience of this drug. Hope it works for you and that the side effects are not too bad.
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orishen

  • *
  • Posts: 10
  • Reason for joining: AL patient
  • Diagnosed: Feb 2017
Re: Venetoclax with AL
« Reply #2 on: July 15, 2019, 01:55:08 pm »
Thanks Ann
Not too many side effects. Mostly fatigue and GI trouble.
Most important-3 months complete response...... :)
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AnnR

  • ***
  • Posts: 126
  • Reason for joining: Recently diagnosed with cardiac amyloidosis
  • Diagnosed: April 2017
Re: Venetoclax with AL
« Reply #3 on: July 17, 2019, 04:57:04 pm »
Really pleased to hear that treatment appears to be working.
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