My sister has Al amyloidosis kidneys, spleen, liver and digestonal tract. She is no longer having chemo as too physically weak to cope with side effects. She is on oramorph and takes morphine twice daily in tablet form too. She has recently had kidney infections but with antibiotics these have a baited somewhat. She is now becoming incapacitated by diarrhoea and stomach pain. This can last for up to three days which means she is too weak to go downstairs as she has been able to during the last three months. I guess I'm asking whether or not this is common and what people do to help alleviate the symptoms? A hot water bottle helps but is there anything else other than oramorph that helps? We are assuming kidney function has also now deteriorated but can't get blood tests until she is in a very much worse state of lucidity. Would appreciate any feedback. With thanks Debbie
