I have been in kings college hospital,for a month and all they have done is prop up my kidney function with iv fluids. My visit to the amyloid centre on 11th May was depressing, amyloid in kidneys, spleen and liver plus heart. They are sending me home today to have all outstanding investigations as an outpatient. Long waits for cardiac mri and whole body mri. I have to say I am pretty disgusted. Told at centre 3.to 4 months left without treatment. I can’t wait t9 get,out if kings but even after all this time no treatment at all. I am going to the national newspapers tomorrow. Absolute despair that no treatment given.