Amyloidosis is a rare disease and most people have never heard of it. If you or your family member have amyloidosis you might find it helpful to talk to other patients and their families on this forum.
Much information about amyloidosis is available on the internet. Some of it is alarming and much of it can be confusing. There are many different types of amyloidosis. Each type has different causes, different symptoms and different treatments.
For reliable information about amyloidosis, please visit the National Amyloidosis Centre Patient Information website at:
www.amyloidosis.org.ukThe National Amyloidosis Centre (the NAC) is part of the University College London (UCL) Division of Medicine and is situated at the Royal Free Hospital in Hampstead, London. The NAC has been at the cutting edge of treatment and research into all aspects of amyloidosis for over 25 years and has been responsible for the UK national caseload of amyloidosis since 1999. The NAC is a highly specialised NHS clinical service funded by NHS England to provide a diagnostic service for amyloidosis patients throughout the entire UK.
For more information about the National Amyloidosis Centre, please visit:
http://www.ucl.ac.uk/amyloidosis/nacDownloadable PDFs of the NAC newsletters are available at:
http://www.ucl.ac.uk/amyloidosis/nac/newslettersDownloadable PDFs of the NAC patient information leaflets are available at:
http://www.ucl.ac.uk/amyloidosis/nac/patient-info-leafletsTo make a donation to the NAC, go to:
https://www.royalfreecharity.org/donate/fund/amyloidosis-research-fund