Hi, I am wondering if there is anyone in the Birmingham area who would like to meet up for a chat/,support ?
I am a little disgruntled at not having much support from my local hospital, today it seemed i knew more about AMYLOIDOSIS than the consultant, she explained she didn't know much about it !!!
It occurred to me that there is no-one nearby if you need to vent. I know family and loved ones are fantastically supportive, but sometimes they can be too close and I never want to upset them.
If like me you would just like to bend the ear of someone who really understands, then please get in touch.
I have had AL amyloidosis since March 2013 and a SCT in June 2014. I am 50 years young !