Small fiber neuropathy

[toril]

I have had neuropathy for 3 years now. I still dont know if it is because of amyloidosis. I havent got the diagnose. My neurologist has ordered EMG, thermotest, skin biopsi and nerve biopsy. I will go to the hospital in april and the biopsy will be sent to NAC. I Wonder if some of you have experience With nerve biopsy?

I also take cymbalta for the nerve pain, biut it doesnt help much.

I saw a post here describing terrible pain in the left arm. I have exactly the same. And it is worst in the night.

I have also sent bloodwork to NAC, waiting for results soon.

Wish you all a Nice day!

[patpinchin]

Hi Toril,

I have had excruciating neuropathy in the mouth for 13 years with inadequate symtom control.
I have been taking Pregabalin which really did not help much but was better than nothing. Recently I have been seeing a Chronic Pain specialist. He told me that often a low dose of a combination of drugs works better than a high dose of a higher single dose of one drug. He said the "classic" modern treatment for neuropathy is Pregabalin and Duloxetine (Cymbalta). Duloxetine makes my nerve aggravation worse, so I cannot take it. He then prescribed Oxcarbazepine (Trileptal) to be taken in combination with Pregabalin. Whilst not miraculous, this is helping more than anything I have previously tried. This lecture with slides is particularly useful and the question and answer section at the end is very helpful.
Managing Peripheral Neuropathy https://www.youtube.com/watch?v=v_cqb1LGREs