Scotland Support Group

[georgeturner]

September Meeting Report

Thank you to everyone who managed along to the meeting at the Black Watch Castle and Museum in Perth. It was good to welcome Ian to the group. It was nice to catch up with everyone over a relaxed lunch in the Cafe. We then visited the Poppies Weeping Window display to mark the centenary of the First Word War.

We decided the next meeting will be in Edinburgh in January, Saturday seems to be the preferred day. Ruth will try to find somewhere that we can book to meet up for a bite to eat and a chat. If anyone else can suggest somewhere, that would be great. Send me your suggestions and I'll try and sort out the meeting.

If anyone is interested in joining the group, post, email or PM me through the forum for more information.

[georgeturner]

Scotland Support Group at the Black Watch Castle in Perth

[Mark McConway]

Just wanted to add my thanks to those of others for George's continued enthusiasm in organising our Scotland Support Group meetings.  What started off as a single meeting between three of us about 18 months ago has grown into a warm and engaging group meet a few times a year - with partners\ family members coming too.

If you don't have an Amyloidosis Patient Support Group in your area, maybe think about starting one.  Imagine it  as nothing more than arranging a conversation with a small number of people who have a shared interest.  You can run it any way you want.  We decided that the group is more likely to want to meet if it doesn't involve committees, paperwork etc (although that might be necessary if you want to do fundraising etc).

We move the venue about each time we meet and that keeps it fresh too.  Go to nice places and your spirits get a lift as well. 

For me, personally, the biggest single benefit of the group is just knowing that others have been where you are and they understand what you're going through - or have been through.  That has value!

[georgeturner]

October Meeting

The next Glasgow Myeloma UK Support Group meeting will be held on Thursday 27 October 2016, 6.30 pm – 8.30 pm at the Maggie's Centre, Gartnavel Hospital, Glasgow.

https://www.myeloma.org.uk/events/event/glasgow-myeloma-support-group/

Myeloma UK welcome patients, family and friends with all types of amyloidosis, not just AL, to attend. A few of our group go along regularly and are planning to be there. If you can, come along and join us and Lesley, the Support Group Clinical Nurse Specialist, at this informal meeting for tea, coffee, information, sharing and a chat. Look forward to seeing you.

I'll be trying to set up our next Scotland group meeting in Edinburgh in January through our mailing list. If you would like to join us, send me your email address and I'll add it to our mailing list. Suggestions about where and when you'd be available to meet would be most welcome.

Post, email or PM me through the forum for more information.

[georgeturner]

January Meetings

The next Glasgow Myeloma UK Support Group meeting will be held on Thursday 12 January 2017, 6.30 pm – 8.30 pm at the Maggie's Centre, Gartnavel Hospital, Glasgow.

https://www.myeloma.org.uk/events/event/glasgow-myeloma-support-group/

The Glasgow Myeloma UK Support Group welcome patients, family and friends with all types of amyloidosis, not just AL, to attend. A few of our group go along regularly and are hoping to be there. If you can, come along and join us and Lesley, the Support Group Clinical Nurse Specialist, at this informal meeting for tea, coffee, information, sharing and a chat. Look forward to seeing you.

I'll be trying to set up our next Scotland Support Group meeting in Edinburgh sometime in January through our mailing list. If you would like to join us, send me your email address and I'll add it to our mailing list. Early Suggestions about when you'd be available to meet (usually a Saturday) and any suitable places in Edinburgh where we can book a table to eat and chat would be most welcome.

Post, email or PM me through the forum for more information.

Meanwhile I wish everyone a Merry Christmas and a Happy, HEALTHY New Year.

Lang may yer lum reek.

[georgeturner]

January Meeting of the Glasgow Myeloma UK Support Group

The Glasgow Myeloma UK Support Group Meeting will be held on Thursday 12 January 2017, 6.30 pm – 8.30 pm at the Maggie's Centre, Gartnavel Hospital, Glasgow.

 https://www.myeloma.org.uk/events/event/glasgow-myeloma-support-group/

They welcome patients, family and friends with myeloma and all types of amyloidosis, not just AL, to attend. A few of the Scotland Amyloidsis Group go along regularly and are hoping to be there on Thursday 12 January. If you're in the Glasgow area and would like to meet us, come along and join us and Lesley, the Myeloma UK Support Group Clinical Nurse Specialist, at this informal meeting for tea, coffee, information, sharing and a chat.

Post, email or PM me through the forum for more information.
 
Look forward to seeing you.

[georgeturner]

January Meeting of the the Scotland Amyloidosis Support Group


The group will be meeting on Saturday 21st January at the Fruitmarket Gallery Cafe, Edinburgh. Check out their website and menu
 -   http://www.fruitmarket.co.uk/cafe/

Thanks to Ruth for arranging and booking the Cafe (Booked in Ruth's name).
The table is booked in the Fruitmarket Gallery Cafe at 12.30 on Sat 21st for 10-12 people. Gallery address is 45 Market Street and really is right behind Waverley Station (opposite City Art Centre).

If you haven't already done so and would like to come along, please let us know so that we can try to book extra seats at the Cafe.

It's a very informal meeting for patients, family, carers and friends and a chance to meet over a bite to eat and to share experiences with others affected by amyloidosis. Or just have a blether and catch up.

If you would like to join us, or if you want any more information about the meeting or the group, please contact me by email, PM or by posting on the forum.

Looking forward to seeing those of you who can make it to our first Meeting of 2017 on the 21st in Edinburgh.

[georgeturner]

CANCELLED January Meeting of the Glasgow Myeloma UK Support Group

Sorry for the late notice, but I've just found out that the meeting today has been cancelled as the weather does not look too good this evening.
Take care and hope to meet up in Edinburgh or at the next Myeloma UK meeting.

[georgeturner]

January Meeting Report

Thank you to everyone who managed along to the Edinburgh Meeting.

Special thanks to Ruth for booking the Fruitmarket Gallery cafe for us. It was a good choice, close to Waverley Station and Princes Street, but away from the crowds, and they served a good Cullen Skink. Sorry, I can't comment on the rest of the food because it was everyone's choice, but the rest of the menu offered other tempting options. Not so many managed along this time. It's difficult to get a date and venue to suit everyone as some of us will have a fair bit to travel no matter where we choose, but we do try to vary the location to suit.
 
So if anyone is visiting Edinburgh at anytime and wants to find a quieter place to eat, give the Fruitmarket Gallery cafe a try. It's in a small Gallery with a cafe, bookshop, some interesting exhibits and free entrance.

Our meetings are very informal and all about providing patients their family, carers and friends with a rare opportunity to meet others in a similar situation over a bite to eat, and to share experiences about being affected affected by amyloidosis. Or just to make new friends and have a blether, or catch up up with old friends.
Those of us who were there decided to hold the next meeting in May in Kilmarnock. Hoping that Gail will be able to arrange a good place and date for us to meet. More to come on that nearer the time. Meanwhile check your diary and keep your options free for any Saturdays in May you can manage.

If anyone is interested in joining the group, post, e-mail or PM me through the options on the forum for more information.

[FionaRitchie]

I would love to join the Scotland support group if possible? I'm not a patient but I am doing my best to care for my brother who has Cardiac AL Amyloidosis and lives in England. I would love to meet others with experience of this rare condition as it may help me to help my brother.
I live near Maybole in South Ayrshire. Thanks

[georgeturner]

Hi Fiona,

You are most welcome to join us. We have an e-mail list which we use to arrange meetings and to keep in touch. Our next meeting just happens to be planned for May in Kilmarnock. We have 2 members from Ayrshire. If you don't want to send your e-mail on the forum, you can PM me and I'll add you to our list.
Some of our group go along to the Glasgow Myeloma Support Group. They can answer your questions on a free helpline, and they have booklets on AL. I'll be posting information about the next Myeloma Support Group meeting fairly soon. Worth coming along to if you can.

Hope to see you soon.

[georgeturner]

March Meeting of the Glasgow Myeloma UK Support Group

The next Glasgow Myeloma Support Group Meeting is on Thursday 2 March 2017 from 6.30 pm to 8.30 pm at -

Maggie’s Centre,
Gartnavel General Hospital,
1053 Great Western Rd,
Glasgow,
G12 OYN

They are happy to welcome people with all types of Amyloidosis not just AL. A few of us from our group go along regularly, so if you would like to join us please do.
 
Regards,
George

[Linda Wolfe]

Happy to be kept on the email list but am unlikely to make it to the May meeting in Kilmarnock.  However, if I can be of any help locally (Perthshire) to anyone else involved in their own care for AL Amyloidosis or the care of a friend or relative, please get in touch.  I was diagnosed in 2014, had six months of chemo etc and am now in remission.  I lead a full life and just need the monthly blood samples and annual check-up at NAC.  I am hugely grateful for the care I have received from medics and family alike.  Linda Wolfe

[georgeturner]

May meetings

The next Glasgow Myeloma UK Support Group Meeting is on Thursday 4 May 2017, 6.30pm – 8.30pm
at Maggie’s Centre, Gartnavel General Hospital, 1053 Great Western Road, Glasgow.
Myeloma is closely linked to AL Amyloidosis but the group welcome people affected by all types of Amyloidosis. Some of our group have been going along and been made very welcome. See link below.
https://www.myeloma.org.uk/wp-content/uploads/2013/08/Glasgow-Support-Group-May-2017.pdf

Has anything been arranged yet for our own May group meeting in May? I won't be available 13th, but will try to make it to the meetings depending on health.

[Mark McConway]

George,

I'll pick up the trail with our group and see what's what as regards the meet-up.  Would a lift from your home be helpful to you?

Hope you're keeping well.

Mark